Listen to Your Body

For as long as I can remember, people have told me to listen to my body. It was practically the soundtrack of my childhood. I heard it from nurses, from my mother, and most recently from my cardiologist, who said it with the same energy as someone offering ancient, mystical wisdom. Going to a high elevation? “Listen to your body.”

It sounds gentle and intuitive. It sounds like something you’d hear during yoga while someone rings a tiny bell. But for me, that phrase has never meant serenity. Listening to my body has always meant one thing: prepare for impact.

My body has never been a calm inner compass. It has been a 24-hour breaking news alert system. “This just in, you might be dying…” Numbers. Readings. Symptoms. Side effects. Every twinge a possible emergency. Every flutter a potential disaster film in the making. .

“Is this a headache or a stroke?”
“Chest pain or arthritis?”
“Am I tired or am I fatigued?”

And my personal favorite: “Do I have a blood clot?” A diagnosis I have never had in my entire life, but a theory my brain presents with the enthusiasm of a kid showing you their newest treasure.

After years of this, listening stopped meaning awareness. It became surveillance. It was less “inner peace” and more “airport security.” And thanks to the alphabet soup of C-PTSD, OCD, ADHD, and other neurological party tricks, that vigilance was cranked up to maximum volume.

To be fair, I was born with a complex heart condition, so paying attention mattered. Small shifts really did mean something. But somewhere along the way, I began to believe my literal survival depended on catching every flicker of sensation before it turned into catastrophe. My body became a project, and I became a project manager who never got a day off.

Eventually, something rewired itself. I stopped recognizing my body as a place where emotions lived. Sensations were never just sensations. They meant illness or medication changes or tests or occasionally “Hey, for real though, you might be dying.” A racing heart was not fear. Tightness in my chest was not sadness. My body wasn’t allowed to feel; it was only allowed to signal.

Even professionals played into this without meaning to. A dull ache? More tests. A weird flutter? More medication. A moment of discomfort? Let’s throw in a scan for fun. No one, including me, considered that my body might also be speaking in the language of emotion.

By the time panic attacks appeared, I’d spent years responding to every sensation as if it belonged to my heart. So when the symptoms started, the doctors and I followed the same script we always had; tests, scans, monitoring. It wasn’t until we ran out of physical explanations that we finally realized: my body wasn’t warning me about my heart. It was trying to tell me I had feelings I’d never dealt with, and my mind was tired of waiting it’s turn.

Now, when I try to feel my feelings, I often get static. What I hear is the echo of a system that kept me alive but no longer matches the life I’m trying to live. Any detachment I experience is not apathy. It is survival being a little overzealous and not knowing it can clock out now.

Even the most basic emotions can hit the old alarms. I rarely assume I am having a feeling. I assume I am having an event. The smallest beep from a microwave or phone still makes my brain behave like it is back in the hospital, ready for a plot twist. It is very Lost in Space. My mind goes full B9 yelling, “Danger, Will Robinson,” and my system responds as trained: shut it down, stay calm, stay alive.

These days, I am trying to listen differently. I am learning to notice the quieter signals: the warmth of a blanket, the gentle rhythm of breathing, the moment of contentment when a room feels safe. I am teaching my body that not every sensation is a threat and not every feeling requires medical intervention. Some things can simply exist without becoming a diagnostic mystery.

People love to tell those of us with lifelong medical conditions to be strong. But strength does not always look like vigilance. Sometimes strength looks like unclenching your jaw, and relaxing your shoulders. Sometimes it looks like rest. Sometimes it is trusting that your body can communicate without sending up a flare. A whisper can be just as wise as a wail.

I am not trying to unlearn survival. Survival has been my longest relationship. I am simply trying to expand it, to let it include moments of ease and belonging and maybe the occasional emotion without the immediate assumption that the end is near.

So when something rises in my chest now, I pause. I breathe. Take a quick look at my vitals, just to satisfy the tiny intern who lives in my brain. (I am still me guys.) But when everything comes back normal, I remind myself that a feeling can simply be a feeling. A heartbeat can simply be a heartbeat. And sometimes the noises I once treated as danger are nothing more than the ordinary soundtrack of being alive.

Maybe this is the real meaning of listening to my body. Not scanning for illness, but noticing the quiet whisper of an emotion before I mistake it for something medical. Not bracing for danger, but letting myself recognize sadness, or joy, or fear, or grief as themselves. I spent most of my life believing feelings were symptoms. Now I am learning how to tell the difference, and even more than that, how to let emotional feelings exist without rushing to diagnose them. It turns out my body has been trying to speak in many languages, and I am finally learning to understand more than one.

My People : Part 1

One of the lessons that was hardest for me to get in therapy, was that there is good in all situations. This is a hard thing to believe for someone who has lived a life that has had more than its share of trauma and hard times. It is hard for a brain with C-PTSD to look at the hardest parts of their life and think, “That was bad, but hey, silver lining!”.

I didn’t see things like building resilience as an upside to the things I had been through. I thought I would rather have no resilience and an easier path. For a very long time I had a horrible time accepting the compassion and empathy of others. Receiving those things made me feel like people felt entitled to more of me than I wanted to give them, I thought that they simply felt bad for me, the “poor little sick girl”. I hated to feel pitied or worse and for lack of a better term like inspiration porn. I had many lessons early on  that taught me to be leery of people who did not know me well, yet were overly interested in the circumstances of my life (thanks dad!). I had to unlearn what I thought I knew and come to terms with what was more likely –  most people are compassionate and genuine with no strings. 

This week I was given what felt like my final exam on this exact subject. Could I accept true kindness and compassion without feeling like I was being pitied, or portrayed as a victim of my own life circumstances? 

Before I get into my final exam I need to adequately describe how uncomfortable displays of solidarity, compassion and generosity previously made me. Perhaps uncomfortable is the wrong word, let’s try blindingly angry, yes I think that fits better. Previously when I was on the receiving end of acts of kindness, and generosity due to my medical condition I would enter my therapists office fuming, raging, mad. I felt like I was in a Catch 22. I needed people to know about what was going on with me in order to be safe in case something went wrong, and to be understood when I needed time off to deal with it. I could literally not fathom that a side effect of people knowing my situation would result in genuine concern and desire to help. When those things happened because I surround myself with good people, I wanted  to crawl out of my skin and into a dark little hole. I didn’t want to be seen anymore. I felt like I had revealed too much. Like the Wizard of Oz, they had seen behind the curtain and knew that I wasn’t great and powerful, after all, I was in fact just a human, doing her best. At the same time I was angry to have people’s empathy which I mistook for pity, I also felt incredibly guilty for people having any feelings towards me at all. I felt like I had gotten “too close” to people, because I wanted to minimize fall out if something awful did happen to me. I felt unworthy of the love and kindness I was shown. (Have I mentioned that I have been to a lot of therapy and am doing much better now?) 

I am incredibly lucky to have worked in a phenomenal school, with amazing people for the last 15 years. I have worked with most of my closest co-workers for that whole time. Having people I am familiar with and are familiar with me has been an incredible blessing over the years where my health is concerned. They have always had my back and made it as easy as it can possibly be for me to take the time I need to deal with my health. I have not always been the best at receiving that kind of support, but they have always taken awkwardness in stride. Earlier this week they truly outdid themselves.

I arrived at school wearing a tie-dye shirt, super typical for me. I was amused and delighted that many of my friends and co-workers coincidentally were also wearing tie-dye. How crazy! I commented over and over. I am rambling on about the amazing coincidence of all the tie-dye and rainbow colors everyone is wearing when my co-worker fesses up and says to me “We did this for you.” I thought she was joking and I laughed, “Yeah you guys planned to be a rainbow for me.” Everyone else in the room nods their heads and confirms that yes indeed they planned this for me. In fact they tell me the whole staff is wearing tie-dye and rainbows for me and by the way I’ve just been Venmoed an incredibly generous amount of money the school raised for me last week. The only coincidence happening here was that I decided to wear tie-dye  too. Amazingly no one hinted I should and no one told me. My therapist would call this a synchronicity, an outward sign that we attract what we need in our lives. I am beyond thankful to have attracted these much needed people into my life.

The donations were extremely kind and generous but I have to say walking around and seeing my coworkers (many I don’t know that well) dressed in tie-dye for little ol’ me? It was an incredible sight. It was just amazing to have a visual of all the people in my corner, just in this one place, this one building, altogether about 50 co-workers were dressed in tie-dye, it blew my mind. All of this, and not one time did a single one of those pesky thoughts that I have had in the past about being seen as weak, or someone to be pitied. No worry about what knowledge or access others may feel they were entitled to, and no feeling unworthy of the demonstration of love and kindness was in sight. I did it. I passed this final exam. Never (yes never) before have I been able to receive this kind of expression of solidarity and love without later feeling overwhelmed by those negative thoughts and feelings. 

I am so thankful for all the people in my life who have been so kind and supportive of me. I have such a vast and diverse network of people who I love and who love me. I am not quite sure what I have done to deserve them all. I haven’t even gotten to the hard part yet and my people have shown up, from every part of my life, in every way I could ask for.