Blog Archive

  • Still stable, still strong. Not yet.

    If there is anything I have learned through this whole process it is that I shouldn’t bury the lede, so here it is, after being presented for a second time, my case for heart transplant remains on hold and I have not been listed. I am happy with this decision. I find I am only…

  • The Week My Case Was (Supposed To Be) Presented a Second Time

    One week before I got the call that my case for heart transplant would be presented for the second time, I said goodbye to my beloved cat. The end came quickly for us. He was old, it is true, but he was also a complete mad man. That was until he woke up from a…

  • The Beginning

    People often tell me that I need to write a book. Maybe one day when all of this is “over” I can think about that. Right now I have enough seemingly insurmountable tasks ahead of me, I don’t need to add any more, plus, where would I even start?  I may never write a book,…

  • Bad Ass Zone

    I once thought,  if not for my heart disease I would want to be the kind of person who might try to climb Mount Everest. Recently, I have been thinking that I kind of have been climbing my very own Mount Everest for the last 41 years. It seems like I climb for a while,…

  • One More Time With Feeling

    The thing about roller coasters is, after a steep drop and a straight away, they like to throw in a loop. The drop? My first appointment with the heart failure and transplant team, almost exactly one year ago to the day. The straight away? The holding pattern I have been in since then, where I…

  • Where The Heck Is My Wagon?

    In order to fall off of a wagon, you have to be on it for at least a little while. I call that a win. From June to the end of July I did great. I watched my diet, I worked out, I did all the things, and then…the real world came back, summer ended…

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