Blog Archive

  • Enough

    I have struggled much of my life with the feeling of enough. Being a sick kid I was always worried that my contribution to my family wasn’t enough to outweigh the cost of time, money, and mental bandwidth my illness required. Once upon a time, and more than once my father remarked off the cuff…

  • It’s not tomorrow.

    “It’s not tomorrow.”  That is the phrase I have been telling myself and my mother at the end of each conversation we have had since Ashley, the nurse coordinator and my self-proclaimed “newest cheerleader” handed us “The Packet”. Perhaps not THE packet but definitely a packet, a packet that indicates we have taken another step…

  • Ease

    When my therapist first suggested the idea of group therapy for me, I was skeptical to say the least. I had a hard enough time in my own company, with my own issues, I wasn’t sure how I was going to enjoy or interact with others and theirs. Much like with the other aspects of…

  • Sideways

    Sometimes, even with the best doctors, and the best teams things go sideways. As far as I can tell the reason for this? We are all humans, and as my nephew once said when he was three or four “We are just made of meat.” Sometimes the truest words come out of the mouths of…

  • Scars

    When I was in elementary school, we had an indoor swimming pool. A few times a week our classes would get to put on our bathing suits in the middle of the school day and take swimming lessons from our PE teachers. I was never a particularly modest child, in fact it was all my…

  • What now?

    Ten days have passed since my family and I had the first of what I now know will be many appointments with my new specialist. My biggest worry about the appointment was that having all of us present would be overkill, that this appointment wouldn’t be all I had made it to be in my…

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